I know what you mean- that is exactly how I feel. I’ve been struggling to cure my SIBO since it was diagnosed about a year ago now. I’v had 6 months of antibiotics and 8 weeks on an elemental diet. The diet worked better than the antibiotics (xifaxan is not available in the UK so I am just taking broard spectrum antibiotics which give me terrible side effects) but I can’t get it down further than 30ppm on the lactulose breath test.
I’m now on a high protein diet with only a few limited carbs (cougette and butternut squash). I am eating a lot of meat and eggs and nuts. Also having hard cheese and lactose free milk. I think it is working somewhat but I haven’t had another breath test since starting the diet. The dr wants me to take more antibiotics but I don’t want to unless he can get me the xifaxan which he can’t
Any suggestions to help cure this would be much apprectiated. I had also found the articles on RLS connection- I have teeth grinding when my levels are high this is another type of bruxism that I believe is linked. The grinding gives me terrible migraines and muscle tightness and aches. I get it both when the bacteria are blooming from eating wrong and also when they are dying off in numbers too big for my body to detox. Only thing that helps is activated charcoal which seems to mop up the toxins in the gut before they enter the blood stream.
Good luck on your journey. Please email if you want to chat or compare notes.
Kind regards
Melanie
30yr old female with SIBO- 50kg despite trying to gain weight for last 3 years.
A blog about Small Intestinal Bacterial Overgrowth (SIBO/SBBO) written from a patient's perspective. Definitely not a definitive medical guide. Please do not read this blog as medical advice but rather experiential info from a well-researched, but often super-brain-fogged patient.
megan:
Hi, This may not help,...but...my son lost 95% of his small intestine at age 17...a year later....the sibo symptons started...antibiotics didn't work
Girrlock Holmes:
Vaxine! Thanks so much for your comment. Your story had me laughing out loud; what a sight! And you tell it with such humor. I see now I was so lucky
Girrlock Holmes:
I'm so glad I could offer up new info - and oh yes swallowing syncope and micturition syncope do sound worse. I mean, not on the surface, of course, b
October 6, 2009 at 2:37 pm
I know what you mean- that is exactly how I feel. I’ve been struggling to cure my SIBO since it was diagnosed about a year ago now. I’v had 6 months of antibiotics and 8 weeks on an elemental diet. The diet worked better than the antibiotics (xifaxan is not available in the UK so I am just taking broard spectrum antibiotics which give me terrible side effects) but I can’t get it down further than 30ppm on the lactulose breath test.
I’m now on a high protein diet with only a few limited carbs (cougette and butternut squash). I am eating a lot of meat and eggs and nuts. Also having hard cheese and lactose free milk. I think it is working somewhat but I haven’t had another breath test since starting the diet. The dr wants me to take more antibiotics but I don’t want to unless he can get me the xifaxan which he can’t
Any suggestions to help cure this would be much apprectiated. I had also found the articles on RLS connection- I have teeth grinding when my levels are high this is another type of bruxism that I believe is linked. The grinding gives me terrible migraines and muscle tightness and aches. I get it both when the bacteria are blooming from eating wrong and also when they are dying off in numbers too big for my body to detox. Only thing that helps is activated charcoal which seems to mop up the toxins in the gut before they enter the blood stream.
Good luck on your journey. Please email if you want to chat or compare notes.
Kind regards
Melanie
30yr old female with SIBO- 50kg despite trying to gain weight for last 3 years.